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Samarbeid mellom ansatte og pårørende til personer med en nyoppdaget alvorlig psykisk lidelse

Nordby, Kjell; Kjønsberg, Kari; Hummelvoll, Jan Kåre
Research report
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URI
http://hdl.handle.net/11250/133786
Date
2008
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  • Hedmark Rapport / Reports (ISSN: 1501-8563) [220]
Abstract
Norsk: Denne studien er fase 2 i prosjektet: «Samarbeid mellom ansatte

og pårørende til personer med en nyoppdaget alvorlig psykisk lidelse». Studien er

et samarbeid mellom Divisjon psykiske helsevern, Avdeling for psykosebehandling

og rehabilitering og Høgskolen i Hedmark, Avdeling for helse- og idrettsfag.

Gjennomføringen skjer innen Seksjon for utredning, diagnostisering og behandling,

som gir et tilbud til unge mennesker med psykoselidelse. Hovdemål: Bygge

opp et tilbud, basert på vitenskapelig kunnskap og praksisbasert evidens, som

pårørende til de unge med en nyoppdaget psykoselidelse opplever møter deres

behov og ønsker.
 
English: This study is part of the research project: «Collaboration between staff

and relatives to persons with recently discovered serious mental illness». The study

is a collaboration between Innlandet Hospital Trust, Division of Mental Health Care,

Department of Psychosis Treatment and Rehabilitation and Hedmark University

College, Faculty of Health and Sports. The study is carried out in: Section of assessment,

diagnosing and treatment. Main objective of the study: To develop a service,

based on scientific knowledge and practice based evidence, which meets the needs of

relatives to young people with recently discovered serious mental illness.

The overall design is co-operative inquiry. The present study is considered as phase

2 (2005–2007) of a larger study. It is based on data from phase 1 (2003–2005): Qualitative

research interviews with 24 relatives (19 parents and 5 adult siblings) (Nordby

& Kjønsberg, 2005). Methods used in phase 2: eight focus group interviews (one

with a group of parents and one interview with professionals in each of the four

participating units and three with mixed groups of relatives and staff), dialogue based

teaching lessons, deliberation meetings, document analysis and a postenquete

among relatives). Data were analysed by means of qualitative content analysis and

descriptive analyses.

Results indicate some changes in practice and procedures which regulate the cooperation

between relatives and professionals. The changes vary in the four units

depending on the focus of development. The changes are manifested by the relatives

entering earlier into collaboration with the staff, and that support is secured to

relatives when the patient is transferred to another unit. There is more focus on and

support to siblings. Still the units need to focus on siblings to get them included. One

of the units has changed the distribution of responsibility among the staff to secure

continuity early in the collaboration process with the relatives. One unit has introduced an agenda to the relatives before formal meetings to clarify

the aim of the meeting and to reduce insecurity among the relatives. During eight

focus group interviews, dialogue based teaching sessions, deliberation meetings and

a postenquete some essential conceptions have emerged as important to good quality

cooperation between relatives and staff: Encounter, hope, giving and receiving information,

roles and support and guidance. The siblings have brought into focus the

importance of viewing the patient as a whole person. In the focus group interview

both relatives and staff underline the importance of imparting hope. 63 % of relatives

experienced this in «large degree» or «very large degree». Only 7 % (two relatives)

answered in «little degree».

An evaluation of methods used in this research project judge the design of co-operative

inquiry as a relevant strategy in future development in health care practice,

though continuity of the project and information to staff should be more focused and

taken care of.
 
Series
Rapport
05/2008

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