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Young and midlife stroke survivors’ experiences with the health services and long-term follow-up needs

Martinsen, Randi; Kirkevold, Marit; Sveen, Unni
Journal article, Peer reviewed
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URI
http://hdl.handle.net/11250/2418533
Date
2015
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  • Artikkel - fagfellevurdert vitenskapelig / Articles - peer-reviewed [1246]
  • Publikasjoner fra Cristin - INN [686]
Original version
Journal of Neuroscience Nursing 2015, 47(1):27-35   10.1097/JNN.0000000000000107
Abstract
The aim of this qualitative study was to explore young and midlife stroke survivors’ experiences with the health services and to identify long-term follow-up needs. Sixteen participants from two cohorts were interviewed in-depth. The interviews were analyzed applying a hermeneuticYphenomenological analysis.

The participants struggled to gain access to follow-up health services. They felt that whether they were

systematically followed up was more coincidental than planned. Young and midlife stroke survivors thus appear vulnerable to falling outside the follow-up system. Those participants who received some follow-up care perceived it as untailored to their specific needs. To be considered supportive, the follow-up programs must be in line with their long-term needs, take into account their particular challenges as young and midlife stroke survivors, and be planned in close collaboration with the individual patient. To secure systematic and follow-up health services tailored to the individual, knowledgeable and committed healthcare professionals should play a prominent role within the community health services.
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