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The while of participation: A systematic review of participatory research involving people with sensory impairments and/or intellectual impairments.

Rix, Jonathan Robert Macgregor
Peer reviewed, Journal article
Accepted version
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The+while+of+participation+-+Rix+et+al+2019.pdf (Locked)
URI
https://hdl.handle.net/11250/2720137
Date
2019
Metadata
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  • Artikkel - fagfellevurdert vitenskapelig / Articles - peer-reviewed [1179]
  • Publikasjoner fra Cristin - INN [616]
Original version
Disability & Society. 2019   https://doi.org/10.1080/09687599.2019.1669431
Abstract
This paper reports on the first systematic review of literature associated with participatory research involving people identified with sensory impairments and/or intellectual impairments. It was initiated as part of ARCHES, an European Union-funded heritage project. The review sought to examine processes and activities used for organising participatory research involving people identified with sensory and/or intellectual impairments. 54 papers were included, involving studies from 14 countries and varying numbers of participants across different time scales. Insights were gained into use of advisory groups, organisation and support, collecting and analysing data, sharing findings and activity types. Emergent themes enabled an identification of the while of participation. The while represents the tensions, outcomes and component parts which are evident within the multiple moments that span an experience of participatory research. Participation is not about types of activity but how any activity is undertaken.
Description
This article will not be available due to copyright restrictions. © 2019 Informa UK Limited, trading as Taylor & Francis Group
Journal
Disability & Society

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